Research Update

Research Update

by | Aug 29, 2025 | News

New Global Research Confirms What We Already Knew: The Burden of hEDS and HSD is Heavy.   A major new international study has highlighted the realities of living with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD). Despite...
MEET ANU FRANCIS – CTDNA’S NEWEST AMBASSADOR

MEET ANU FRANCIS – CTDNA’S NEWEST AMBASSADOR

by | Feb 26, 2025 | News

We are beyond delighted and proud to announce that Anu Francis (@anu__francis), Australian Paralympian living with EDS is Connective Tissue Disorder Network of Australia’s newest Ambassador. Ensuring the lived voice and experience is central to all that...
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