Being Appointment-Ready with a Heritable Connective Tissue Disorder (HCTD): A How-To Guide.
Being Appointment-Ready with a Heritable Connective Tissue Disorder (HCTD): A How-To Guide Medical appointments can be exhausting, especially when you live with a heritable connective tissue disorder (HCTD). Many people feel rushed, overwhelmed, or worried they’ll...
Hear Our Community Voices
Hear Our Community Voices. Community Member: Jennifer Hillier. Our ‘Community Voices’ Series. At CTDNA, we believe there is power in sharing stories. Our Community Voices series, gives a platform to individuals living with heritable connective...
Research Update
New Global Research Confirms What We Already Knew: The Burden of hEDS and HSD is Heavy. A major new international study has highlighted the realities of living with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD). Despite...