News

Hear Our Community Voices – Marfan Awareness Month 2026

Hear Our Community Voices – Marfan Awareness Month 2026

Feb 27, 2026 |

Marfan Awareness Month. Community Member: Sally Ferguson.   Part of our 'Community Voices' Series. At CTDNA, we believe there is power in sharing stories. Our Community Voices series, gives a platform to individuals living with heritable connective tissue...

Hear Our Community Voices

Hear Our Community Voices

Nov 19, 2025 |

Hear Our Community Voices. Community Member: Jennifer Hillier.   Our 'Community Voices' Series. At CTDNA, we believe there is power in sharing stories. Our Community Voices series, gives a platform to individuals living with heritable connective tissue disorders...

Research Update

Research Update

Aug 29, 2025 |

New Global Research Confirms What We Already Knew: The Burden of hEDS and HSD is Heavy.   A major new international study has highlighted the realities of living with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD). Despite...

Hear Our Community Voices

Hear Our Community Voices

Aug 7, 2025 |

Hear Our Community Voices. Community Member: Rebecca Peiper.   Introducing Our 'Community Voices' Series. At CTDNA, we believe there is power in sharing stories. Our Community Voices series, gives a platform to individuals living with heritable connective tissue...

The Little Mouse that Sparked the Loudest Voice

The Little Mouse that Sparked the Loudest Voice

Jun 19, 2025 |

The Little Mouse that Sparked the Loudest Voice in an Aussie Country Town   In January 2021, Rhianna Cunningham lost her battle with Vascular Ehlers-Danlos Syndrome (vEDS), a rare genetic disorder characterised by fragile blood vessels and skin that bruises and...

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