The Little Mouse that Sparked the Loudest Voice

The Little Mouse that Sparked the Loudest Voice

by | Jun 19, 2025 | Stories

The Little Mouse that Sparked the Loudest Voice in an Aussie Country Town   In January 2021, Rhianna Cunningham lost her battle with Vascular Ehlers-Danlos Syndrome (vEDS), a rare genetic disorder characterised by fragile blood vessels and skin that bruises and...
MEET ANU FRANCIS – CTDNA’S NEWEST AMBASSADOR

MEET ANU FRANCIS – CTDNA’S NEWEST AMBASSADOR

by | Feb 26, 2025 | News

We are beyond delighted and proud to announce that Anu Francis (@anu__francis), Australian Paralympian living with EDS is Connective Tissue Disorder Network of Australia’s newest Ambassador. Ensuring the lived voice and experience is central to all that...
Welcome From Our Founding Board of Directors

Welcome From Our Founding Board of Directors

by | Apr 23, 2024 | General

                     Photos: Sue & Janna outside Parliament House, Canberra for Rare Disease Day 2024            Welcome From Our Founding Board of Directors Sue, Janna and Michelle – the CTDNA Founding Directors welcome you to the Connective...
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