News
Hear Our Community Voices
Hear Our Community Voices. Community Member: Rebecca Peiper Introducing Our 'Community Voices' SeriesAt CTDNA, we believe there is power in sharing stories. Our Community Voices series gives a platform to individuals living with heritable connective tissue...
The Little Mouse that Sparked the Loudest Voice
The Little Mouse that Sparked the Loudest Voice in an Aussie Country Town In January 2021, Rhianna Cunningham lost her battle with Vascular Ehlers-Danlos Syndrome (vEDS), a rare genetic disorder characterised by fragile blood vessels and skin that bruises and...
Newsletter – May 2025 – Vol. 2
Click here to download The Connected Tissue Feb 2025 Vol 2 pdf
MEET ANU FRANCIS – CTDNA’S NEWEST AMBASSADOR
Introducing Anu Francis – Connective Tissue Disorder’s Newest Ambassador Feb 2025
Newsletter – January 2025 – Vol. 1
Click here to download The Connected Tissue Jan 2025 Vol 1 pdf
REDS4VEDS Day. Meet the very first CTDNA Ambassadors.
As #REDS4VEDS day, the global awareness day for vascular Ehlers-Danlos syndrome (vEDS) approaches, CTDNA would like to introduce our first Ambassadors. Brad and Holley, who live in Victoria Australia with their young sons, Hunter and Isaac. Brad, Hunter and Isaac live...
Welcome From Our Founding Board of Directors
Photos: Sue & Janna outside Parliament House, Canberra for Rare Disease Day 2024 Welcome From Our Founding Board of Directors Sue, Janna and Michelle - the CTDNA Founding Directors welcome you to the Connective Tissue...