EHLERS-DANLOS SYNDROME AWARENESS MONTH MAY 2025

ILLUMINATE THE PATHWAYS TO CONNECTIVE TISSUE DIAGNOSIS

Download How to Sheet 2025  PDF

STEP 1: Choose your method & pathway to light up

Light up your front path, balcony, or entrance at home. Ask your school, church, gym or even a scout hall to get involved. Pathway lights can be as simple as adding one solar powered garden stake light to your front or neighbour facing pathway. These can bought for as little as $2 from the local hardware or lighting stores.

STEP 2: May 16th 2025 – Light-up red for vEDS

Start on the 16th for vEDS day. Make your light red if you can. Then, if you want to, continue to add an Ehlers-Danlos Syndrome orange light each day, to create awareness everyday for each of the 12 other types.  When you’re done:

Tell a neighbour; Take a photo; Upload to socials; Tag @CTDNA on facebook or Insta

DOWNLOAD FLYER –> PUBLIC FLYER CTDNA 2025

STEP 3: Continue to shine a light on the pathways to all EDS diagnosis.

Add more lights each day, for the rest of the month to signify each Ehlers-Danlos Syndrome type. Every light increases awareness of EDS and pathways to diagnosis. Get creative!